TVT/Mesh Worldwide Campaigns and Social Media Networking Sites

United Kingdom
TVT Messed Up Mesh (TVT MUM)

Help and Support to both men and woman who have had the TVT Retro-pubic (gold standard), TVT-Secur, TVT-O and TOT medical device and synthetic polypropylene flat graft mesh for hernias, prolapse, stress incontinence and bladder and bowel disorders. You're not alone!

Website: www.tvt-messed-up-mesh.org.uk/
Message Board: tvt-messed-up-mesh.org.uk/phpbb/index.php
Campaign news:www.facebook.com/tvtmum
Mesh Group:www.facebook.com/people/Tvt-Mesh/100003134600843
News: twitter.com/TVTMum
Channel:www.youtube.com/user/TVTMum
Blog:truthinmedicine-lor.blogspot.com/
Video:www.tvt-messed-up-mesh.org.uk/tvt-videos.html
Latest News:www.tvt-messed-up-mesh.org.uk/latest-news.html

Do you have a Video Story to add to the TVT Mum Channel? Please click here to contact us >>>

UK Press and Media:
www.tvt-messed-up-mesh.org.uk/press-uk.html
Worldwide Press and Media:
www.tvt-messed-up-mesh.org.uk/press-worldwide.html

United States of America
Truth in Medicine Incorporated

Truth in Medicine Incorporated is a patient advocacy organization which educates the public about the potential risks and complications from the implantation of synthetic surgical mesh into the human body. The organization also educates and supports patients who have already been harmed by surgical implantation of synthetic mesh.

Website:www.truthinmedicine.us.com
Blog:www.theladyisachamp.blogspot.com
Personal Website:www.lanakeeton.com
Channelwww.youtube.com/user/LanaKeeton

Insitute of Medicine Public Health Effectiveness of the FDA 510(k) Clearance Process
DATE 14th June 2010
Agenda:
The Committee on the Public Health Effectiveness of the FDA 510(k) Clearance Process will hold a public workshop on June 14-15, 2010 in Washington, DC. The purpose of the workshop is for the committee to gather information related to the statement of task.

YOU CAN HEAR STORIES FROM THE FOLLOWING SUFFERERS AT TRUTH IN MEDICINE - USA

SCROLL TO THIS TIMELINE IN THE VIDEO
Speaker Lana Keeton timeline is at 11.00 mins
Speaker Marion Goldberg timeline is at 22.25 mins
Speaker Denise Jacobs timeline is at 27.17 mins
Speaker Ashley Widener timeline is at 37.07 mins
Speaker Janet Holt timeline is at 72.04 mins
Speaker David Schmidt timeline is at 87.45 mins
Speaker Beverley Payton timeline is at 94.34 mins
Speaker Paul Browning - Institute Research for Women and Families timeline is at 98.57 mins

WEBCAST ARCHIVES
Direct link to the agenda and video (flashplayer) to hear sufferers stories www.tvworldwide.com/events/iom/100614/default.cfm?id=12479&type=flv&test=0&live=0
Or
Click on this link www.tvworldwide.com/events/iom/100614/ to Choose video format (windows or flashplayer)

More Campaign News on this webpage: www.tvt-messed-up-mesh.org.uk/truth-in-medicine.html

United States of America
Mesh Medical Device Newsdesk

I hope you find this a helpful resource. I’m National News Editor, Jane Akre and I began MDND with the hope of providing the latest news, information and perspective from the regulatory, industry and patient point of view, something that goes underreported in much of the coverage of permanently implanted surgical mesh. The public is just now becoming aware that many devices do not undergo the same scrutiny as prescription drugs and are instead grandfathered in under an FDA loophole that has gone largely unchanged since the 1970s.

Website:meshmedicaldevicenewsdesk.com/

Emke de Graaf and Isabella Mertens founders of MeshedUp

Emke from The Netherlands and Isabella from Belgium have been helping sufferers in The Netherlands and Belgium for three years now (from the beginning of 2009). They have written an enormous amount of letters to newspapers, the government, doctors, the Dutch and the Belgian Health Inspection and all sorts of other organizations to bring awareness and try to stop mesh operations to be allowed in the Benelux. With help of Dutch and Belgian political parties they are trying to change The European Laws concerning medical devices.

Website:www.meshedup.eu >>>
Forumwww.medischforum.nl/gynaecologie >>>

More Campaign news on this webpage:
www.tvt-messed-up-mesh.org.uk/The-Netherlands-Emke-de-Graaf-and-Isabella-Mertens.html

United States of America
Bladder Sling Surgery Complications
By Linda Kilpatrick
What they don't want you to know. My advice to every woman out there, don't do it! I'm sharing my story to save other women the pain and horror of having a surgery that makes your life worse, not better.

Website:teapapers.com/bladdersling/ >>>

United States of America
TVT-NO! Meshie Survival Foundation

TVT-NO! Meshie Survival Foundation is being established to be a safe haven for women injured by TVT and TOT surgical mesh.

Website:tvtno.org/ >>>

Canada
I'm All Meshed Up!

Bladder Mesh Surgery Gone Wrong
Owner Diane Fichter

Website:imallmeshedup.wordpress.com/ >>>

Other Networking areas for help and support

United States of Amercia Victims of Hernia/Vaginal Mesh Surgery
www.facebook.com/groups/111893665491196/322146271132600/

Canadian Victims of Transvaginal Mesh
An information and support group for women suffering with transvaginal mesh complications.
www.facebook.com/pages/Canadian-Victims-of-Transvaginal-Mesh/243312375726574?sk=page_getting_started

Forum: Lawsuit filed Gynecare TVT bladder suspension tape (Prolene mesh) www.topix.com/forum/com/jnj/TTE0RAIRMP5EFC052
Forum: Hernia Mesh Patch Recall - FDA Warns of Death and Serious Healt...
www.topix.com/forum/health/TE4DF83JKBNACOFNO

Worldwide Petitions

Petition: Urgent Review on TVT, TVT-Secur, TVTO & TOT Medical Devices including Synthetic Flat Graft Surgical Mesh. You can read quite a few stories showing on our online petition, please click on the following link
www.thepetitionsite.com/1/an-urgent-review-is-required-on-the-medical-devices-tvt-tvto-tot-and-the-use-of-mesh-graft-for/

To read more information on our petition
www.tvt-messed-up-mesh.org.uk/petitions.html

Petition: Demand Justice for Surgical Mesh Victims WORLDWIDE
www.thepetitionsite.com/1/-the-danger-of-surgical-mesh-and-the-push-to-have-it-removed-from-the-market

Petition: FDA and US Supreme Court: Accountability of med-device companies: injury/death from their products.
www.change.org/petitions/fda-and-us-supreme-court-accoutability-of-med-device-companies-injurydeath-from-their-products

Other useful links www.tvt-messed-up-mesh.org.uk/links.html >>>

Do you have a website, social network, blog to add? Please let us know and we will add yours too.