About TVT Mum
Revised Date: 12th November 2011
New content arriving soon. Whilst the work is carried out on this webpage in the meantime please view some of our achievements by scrolling down the page. Many thanks for your patience.
More Information Arriving Soon
1. About our charity
2. Trustee Profiles
3. Our Team and Volunteers
Achievements Since Website Launched in May 2009
Archived Years
Year 2008 - Started Research on TVT's and other TVT related medical devices and Polypropylene Synthetic Mesh
Year 2009 - Website Development and Launch Date May 2009 >>>
Year 2010 - Campaign Work Commenced >>>
Year 2011
1. Rosenblatt Solicitors bring hope to thousands of women. To read more please click here >>>
2. MHRA have launched an investigation. To read more please click here >>>
3. Our Medical Condition is recognized as a 'Hidden Disability' 'Chronic TVT/Mesh Implant Inflammation'. To read more please click here >>>
4. We have helped hundreds of people and has proved a valuable service. To read more please click here >>>
5. Very successful Fundraising Events. To read more please click here >>>
6. Online and Hardcopy Petition has nearly reached the Target. To read more please click here >>>
7. Ongoing research with thousands of peer documents, we don't upload most of the items due to privacy. A small selection can be viewed on this link: >>>
Proposed Developments for the Year 2012
- Regular contact with our Legal Advisors and Medical Experts
- Presentation of Petition to 10 Downing Street
- National Mesh Register
- Finding more Experienced Surgeons in Mesh Related Complications
- Agenda for First Annual General Meeting
- Awareness Products and Online Shop
- Improvements to the Support Group and Care Needs
- Press and Media
Breakthrough News
5th November 2011
In the UK and in the USA this is a recognized 'Hidden Disability' - Confirmed Medical Condition UK: 'Chronic TVT/Mesh Implant Inflammation' and in the USA: 'PFS Syndrome'. I asked Mr Drake on the 3rd of November 2011 for his opinion about our 'hidden disability' we can't keep saying we are 'mesh sufferers' as this is not really recognized. I have authorization from Professor Marcus Drake we can use this medical condition term in the UK 'Chronic TVT/Mesh Implant Inflammation'. To read more please visit the link below for more information:
www.tvt-messed-up-mesh.org.uk/hidden-disability-chronic-tvt-mesh-implant-inflammation.html >>>
Open Letter
Date: 12th November 2011
By Lorraine Evans
Since my research began in 2008 and through the campaign work on the website since May 2009 our medical condition 'Chronic TVT/Mesh Implant Inflammation' although most of us are known as ('Mesh Sufferers') our plight would never or it would of taken a very long time to get people to notice we do need a support service in the UK.
Please click here to view >>>
About the Support Group
TVT Mum website is purely to give help and support to both men and woman who have had the medical device Transvaginal Tension Free Tape (TVT) Sling, synthetic polypropylene mesh for hernia's, prolapse, stress incontinence and bladder and bowel disorders. If you are seeking answers or maybe you want to share your experiences please register with TVT Mum >>>. We are here to give you comfort and to let you know you are not alone, we can help each other through this very difficult time coping with our daily life from being harmed by these medical devices. We are not here to give medical advice in any way although we can put you in contact with professional experts who can help you.
Why we are here
At this present time we do our own extensive research on TVT's and other Mesh related products as I was told from a Medical Professional and on good authority "the medical profession is actually very alert to surgical complications and sadly, investment in research into the area is not regarded as a priority by medical research funding bodies, which seriously hampers our ability to get a true handle on the situation".
For more information on our petition please visit here www.tvt-messed-up-mesh.org.uk/petitions.html >>>
We need your help to continue with our work
please click the donate button
You can follow us on Twitter http://twitter.com/TVTMum >>>
Join us on Facebook: http://www.facebook.com/tvtmum >>>
Advice and Help
