People's thoughts on our work

Updated 12 April 2011

We get a lot of emails and telephone calls every single week from people who show an interest in our work, we thought it a good idea to share some of the comments we receive.

Email received 7 April 2011
Hi, Congratulations on your website. It is very important that patients are made aware of all possible complications and risks that any surgical procedure would entail, hence the requirement from medical professionals to obtain informed consent from the patient prior to commencing surgey. I do feel however, the information on your web site is very one sided.

You highlight any negative exposure to the use of mesh but nothing on how the treatment has successfully helped millions of patients worldwide. These ladies who have been suffering for years, not leaving thehouse through fear of having an embarassing accident. After their procedure the majority of women have had their quality of life transformed for the better. It would be nice to see a less biased view. This way your valid points would have a bigger impact on those you need to persuade.
Name and address submitted.

Our Reply
Thank you for your email and for the congratulations, trust me I never wanted to do this website or have this in my life, but since I am suffering from mesh tape problems since 2005 and I have to add nearly died I feared there must be many people suffering like me and believe me I get many people contacting every single week for help, advice and support.

Unfortunately we are not told the full facts on mesh related complications at our consultations so it is not a fully informed choice, they do not even recommend other alternative treatments.

You mention I am one sided on my website, you are wrong to say this as I have a webpage for the MHRA and also I mention throughout my articles how the surgeons are trying to help us plus I have a webpage of recommended surgeons to treat us, I always communicate with sensitivity and very sympathetic to both sides. Considering thousands are suffering at this present time from mesh tapes there is a need for the truth.

Concerning the suffering from stress incontinence and other bladder and bowel disorders I am fully aware of this growing problem and I too want the best treatment, you are so wrong to assume this procedure with mesh tapes has transformed their lives for the better, did you know it is fact it will erode from day one up to seven years later?

Please visit the website and see the recent expert articles on mesh tapes uploaded on 5 April 2011 click here to view www.tvt-messed-up-mesh.org.uk/pdfs/polypropylene-is-not-inert-in-the-human-body.pdf, it is very important everyone reads it. Unless you can give me evidence there are millions cured and happy with this procedure I would be more than willing to open a new webpage, and I have to say not one person has come forward to me and said theirs has worked.

I do not need to persuade anyone, I have many people approaching me daily. We will never stop in our work and we will continue to have our voices heard.

Remember this quote - Do not confuse Medical Marketing with Science.

By Lorraine Evans
TVT Mum

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