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The Voices Today on Messed up Mesh (TVT Mum)
Help and support to both men and woman who have had the medical device TVT Retropubic, TVT-Secur, TVTO and TOT, synthetic polypropylene mesh for hernias, prolapse, stress incontinence and bladder and bowel disorders. You're not alone!

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Articles and Letters
by Lorraine Evans

Please scroll down the webpage to view all articles and letters. You can also view my Daily Thoughts webpage here >>>

7th April 2015
The History of TVT Messed up Mesh (TVT MUM) Year 2008 to 2015
Please click here to view a brief timeline of events since the year 2008 >>>

27th December 2013
Open Letter
By Lorraine Evans

The biggest achievement for TVT Mum was finding help and giving emotional support to all those suffering serious health issues since having the synthetic mesh implant medical device surgeries. I have helped over a thousand women across the whole of the UK, USA, NZ and other Countries where they can contact each other. I have provided information and pointed them to World leading surgeons experienced in synthetic mesh complications this was achieved through the support group sharing their surgery experiences and giving emotional support for one another.

On reflection I can see the vast majority of people I have met during those years are the most wonderful and caring people and very proud to say, “We did it! Our voices are being heard throughout the World. We have supported each other for years as unpaid volunteers, we can look at the past and the forthcoming years to see what we have achieved and sometimes it appeared to be the impossible feat but we did it with sheer spiritual strength, believing we can win this mesh journey and most importantly we can have our life back and to know there is human kindness to help us through”

Please know I haven't left the TVT Messed up Mesh (TVT Mum) charity and won't ever give up working on the website to bring the latest news plus I will continue to provide a support, help and advice help-line to those who need it.

Be happy, kind to each other and to yourself. If there is an opportunity to help someone going through a difficult time help them whether it’s by invite, sharing experiences, and above all to show empathy for one another.

Presently I am so much happier in my life I have made the decision to move on for better times ahead.

Wishing you all with Health, Wealth and Happiness for the New Year 2014

Edited on 27th January 2013
Message from Lorraine
Today I have promised myself my life and family come first. I have put in full time voluntary hours for years and years helping all those with TVT's and Mesh problems, I think you will agree I have contributed enough to last a lifetime! I need to get away from the 'mesh mess' it has become far too complicated in more ways than one. I will keep the website live and the private message board is open to all those who need help, advice and support. If you wish to join us please click on the link below:
tvt-messed-up-mesh.org.uk/phpbb/index.php >>>
Stay safe and strong in your mesh journey!

9th September 2012
Timeline of Events for the Year 2012
United Kingdom
January - September 2012
www.tvt-messed-up-mesh.org.uk/timeline-of-events-2012.html >>>

7th September 2012
A must read:
The Current investigations on TVT/Mesh Implants - How it all got started in the United Kingdom!
Document sent to:
The Rt Hon David Cameron MP, Prime Minister - 10 Downing Street, London
Andrew Lansley CBE MP Member of Parliament Secretary of State for Health
By Lorraine Evans

During the year 2011 - I worked on my document for months and months adding every concern I could think of at the time regarding TVT, TVT-Secur,TVTO & TOT Medical Devices and Flat Surgical Mesh used for Prolapse and Hernias. The document was the start of all the current investigations and is in the hands of hundreds of experts within the medical world, regulatory bodies and the legal system around the United Kingdom.

I sent the document on 12th January 2012 and then received shortly after on 25th January 2012 a four page letter from the Department of Health answering all the concerns within my document. TVT Mum is mentioned in the DH letter - 'Websites such as TVT-MUM can also help to increase awareness. The recent increased awareness of this problem is resulting in an increase in the number of reports, helping the MHRA with their assessment'

My document was passed to Dr Susanne Ludgate BSc (Hons) MB ChB DMRT FRCR FRACR Clinical Director, Devices at the Medicines and Healthcare products Regulatory Agency (MHRA) and shortly after we were offered a meeting in February 2012 and then it was changed to actual meeting date for the 20th March 2012. One of the concerns raised at the meeting was the medical advice helpline. There is now hope on the horizon for us to have a NHS Mesh Helpline for patients to receive medical expert advice. Please find below an abstract from one of the emails received from Dr Susanne Ludgate:

Email Dated: 21st June 2012 from Dr Susanne Ludgate:
Abstract Start: I have made very firmly with our experts in this area and they have taken this on board such that one of our experts is bringing this up with his Professional Body to ensure for the future there is some mechanism in place where patients can phone in/contact to have their queries answered or indeed be directed to the appropriate person.

I think this is the first time that I have ever known such an initiative to happen so congratulations to you for pushing this forward. End.

Monday, February 13, 2012
A TIRELESS campaigner is calling on surgeons to stop treating incontinent women as medical guinea pigs.
Currently, medics aim to cure stress urinary incontinence (SUI) by inserting a device known as trans-vaginal tension free tape (TVT), or trans-vaginal tape obturator (TVT-O and TOT), but both have left thousands of women, partially disabled and struggling to rebuild shattered lives.
Title: End our ‘human guinea pig’ hell

12th January 2012
Urgent Review on TVT, TVT-Secur,TVTO & TOT Medical Devices and Flat Surgical Mesh used for Prolapse and Hernias
Dated: 12th January 2012
Sent to: The Rt Hon David Cameron MP, Prime Minister - 10 Downing Street, London
Andrew Lansley CBE MP Member of Parliament for South Cambridgeshire Secretary of State for Health
The document is in PDF format to download please click on this link to view:
Urgent-Review-on-TVT-TVT-Secur-TVTO-and-TOT-Medical-Devices.pdf >>>

DATED: 30th November 2011
The main purpose of adverse reporting is to show the MHRA how many people are harmed and to collate data on all the TVTs/Meshes medical devices also to show the MHRA there is a real serious growing health problem in the UK. It is the MHRA who should be asking the manufacturers WHY is this happening and to give answers on their faulty medical devices, specifications, RCTs etc etc directly to them only and not to allow the manufacturers to approach ill people who are in a vulnerable state of health plus for putting the surgeons in a very awkward sitution after receiving permission to disclose private and confidential medical information between patient and surgeon, this is breaking patient confidentiality and also putting vulnerable people under pressure. Please click here to read more www.tvt-messed-up-mesh.org.uk/notice-mhra-concerns.html >>>

12th November 2011
Open Letter
Date: 12th November 2011
By: Lorraine Evans
Since my research began in 2008 and through the campaign work on the website since May 2009 our medical condition 'Chronic TVT/Mesh Implant Inflammation' although most of us are known as ('Mesh Sufferers') our plight would never or it would of taken a very long time to get people to notice we do need a support service in the UK. All those hundreds of people over the years who have approached me and our volunteer supporters for help, advice and support would of been sat at home alone and thinking they are the only ones!
Please press here to view the full letter >>>

5th November 2011
Breakthrough News
In the UK and in the USA this is a recognized 'Hidden Disability' - Confirmed Medical Condition UK: 'Chronic TVT/Mesh Implant Inflammation' and in the USA: 'PFS Syndrome'. I asked Mr Drake on the 3rd of November 2011 for his opinion about our 'hidden disability' we can't keep saying we are 'mesh sufferers' as this is not really recognized. I have authorization from Professor Marcus Drake we can use this medical condition term in the UK 'Chronic TVT/Mesh Implant Inflammation'. To read more please visit the link below for more information:
www.tvt-messed-up-mesh.org.uk/hidden-disability-chronic-tvt-mesh-implant-inflammation.html >>>

Date: 6th October 2011
stopNew article:
Stop Meshing Around
Unfortunately most of the surgeons in the UK are still putting in TVT's and removing them from others! it just doesn't make sense. Please read this article on the following link:-
www.tvt-messed-up-mesh.org.uk/stop-meshing-around.html >>>

Date: 12th September 2011
Letter: TVT Mum and the work achieved since July 2008
I started my research on TVT medical devices back in July 2008 this is when I discovered I had mesh erosion from the TVT and I was absolutely devastated to find out I had been lied to for years concerning my health as they all knew from the start of my surgery back in October 2005 it was the TVT causing me so much bad health all along. It has been extremely difficult for me to keep the work and the support group going whilst I am in ill health myself with TVT mesh problems plus I have other serious health issues since having this TVT implant, the NHS has left me permanently disabled.
To read more www.tvt-messed-up-mesh.org.uk/tvt-mum-and-the-work-achieved-since-july-2008.html >>>

Date: 21st June 2011
Article: The Medical Term 'TVT'
Confusion on the medical term 'TVT'
Medical term: TVT = TransVaginal Tape
Medical term: TVT = TransVaginal Tension Free Tape
Medical Term: TVM = TransVaginal Mesh
Which is it - TVT, TVM, Slings, Mesh?
To read more www.tvt-messed-up-mesh.org.uk/tvt-medical-term.html >>>

Date: 18th June 2011
The Term 'TVT' What it Means to our Support Group
view variants on the term 'TVT' sent in by our support group members. Every single one gets my vote!
To read more www.tvt-messed-up-mesh.org.uk/tvt-our-support-group.html >>>

Date: 7th June 2011
Article: TVT 'Complexity'
Here I present a small insight as to why they (the medical world) call us 'complex' cases. Over the years I have heard from people who are experiencing problems when they visit A&E unfortunately they don't have a clue as to what is going on and sometimes they don't even know what TVT means. As you can imagine it is very upsetting especially when we are in such pain, flooding with blood and have constant infections, more often than not they tell us we are 'complex'. When I first heard this word I thought what the heck is going on, why don't they recognise these TVT medical devices?
To read more www.tvt-messed-up-mesh.org.uk/tvt-complexity.html >>>

Date: 30th May 2011
Article: Choosing the Right Surgeon
There is a difference between qualified and experienced qualified surgeons. Over the years it has been extremely difficult to find surgeons who are experts in synthetic surgical polypropylene mesh (PPM), TransVaginal Tension Free Tape (TVT )and mesh related complications. I often get asked "where can I find an expert surgeon?"
To read more www.tvt-messed-up-mesh.org.uk/choosing-the-right-surgeon.html >>>

Date: 22nd May 2011
Article: What are the symptoms of mesh tape erosion from TVT medical devices?
I often get asked what are the symptoms for mesh tape erosion so I have decided to publish this information onto the website to help people understand this is a common problem. The following information has been researched from medical expert papers and from people's own experiences with TVT's and mesh surgeries.
To read more www.tvt-messed-up-mesh.org.uk/mesh-tape-erosion-symptoms.html >>>

Date: 22nd May 2011
Article: What is Mesh Surgery?
We are trying to bring awareness on 'mesh surgery' to ensure people worldwide are not maimed for life. The word 'Mesh' is an abbreviation for Surgical Synthetic Polypropylene (also known as Prolene) Mesh (also known as Tape) you will also find it referred to as PP or PPM. Mesh is within the make-up of the medical device such as: TVT (TVM) (Gold Standard), TVT-Secur, TVT-O and TOT plus mesh is used in other surgeries such as Hernias, once you start researching on surgical mesh you will find it is used in other surgeries too!
To read more www.tvt-messed-up-mesh.org.uk/mesh-surgery-what-is-it.html >>>

Date: 23rd January 2011
Article: Serious Concerns with our Surgeons in the UK and the Lax Support from the Governing Bodies NICE and the MHRA
An urgent review is required on the medical devices TVT, TVTO, TOT and the use of mesh graft for hernia repair surgery plus the Governing Bodies NICE and the MHRA who regulate these medical devices.
To read more www.tvt-messed-up-mesh.org.uk/pdfs/serious_concerns.pdf >>>

Date: 10th May 2010
TVT Mum in Focus
Article: It is a Matter on Safety and Urgent Action
I feel sure most of the consultants and surgeons around the UK are trying their utmost to help all the people who have been harmed and experiencing complications from the polypropylene synthetic mesh used in medical devices. From what I understand it has hit them also dealing with it and I feel sure they can see also it is a growing serious health problem especially with the mesh erosion in as much as it has hit us who have been harmed from the mesh, although I have to add it has really caused life changing devastating health problems to all who are currently suffering. To read more www.tvt-messed-up-mesh.org.uk/tvt-mum-in-focus.html >>>

For more information on our petition please visit here www.tvt-messed-up-mesh.org.uk/petitions.html >>>

Navigation links within the TVT Mum website

Hidden Disability Chronic TVT/Mesh Implant Inflammation |
Articles, Urology/Urogynaecology Conferences and Research from around the World |
Articles and Letters by TVT Mum

British Medical Journal | Dispatches Channel 4 Documentary 'The truth about going under the knife'

Advice and Help Guide on TVT, TVT-Secur,TVT-O and TOT Tape/Mesh Medical Devices | Alernative Treatments for Stress Urinary Incontinence (SUI) and Prolapse (POP) | Men's Health | Mesh Related Complications | Mesh Unexplained Symptoms | Mesh Surgery Experiences | Mesh Removal Stories | Synthetic Mesh Other Nasty Products | TVT, TVT-Secur, TVT-O and TOT, Medical Devices | TransObturator Tape (TvT-O and TOT) Medical Devices | TVT Medical Terminology

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