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The Voices Today on Messed up Mesh (TVT Mum)
Help and support to both men and woman who have had the medical device TVT Retropubic, TVT-Secur, TVTO and TOT, synthetic polypropylene mesh for hernias, prolapse, stress incontinence and bladder and bowel disorders. You're not alone!

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TVT/Mesh Sufferers
This is a recognized 'Hidden Disability'
UK flag 'Chronic TVT/Mesh Implant Inflammation'
USA flag 'PFS Syndrome'

Updated 21st December 2011

Breakthrough News - This is a 'hidden disability' and is recognized as a medical condition. We no longer have to call ourselves 'Mesh Sufferers' on official forms although we in 'Meshie Land' know each other as mesh sufferers. It is useful to know what to put on official forms for example: Disability Living Allowance, insurance, etc.

Understanding Chronic TVT/Mesh Implant Inflammation

Added on 21st December 2011
European Association of Urology
A Guide to Chronic Pelvic Pain
www.scribd.com/doc/7823722/EAU-Urological-Guidelines-Chronic-Pelvic-Pain >>>
Message to Elaine, thank you for your watchful eye and sharing your find with us.

What is a 'Hidden disability'?
'Hidden disability' is a catch-all phrase that simply means that a person's impairment or condition is not obviously apparent or visible.

What does 'Mesh Sufferer' Mean?
A Mesh sufferer is someone who is experiencing synthetic polypropylene surgical mesh related complications from the TVT's/Vaginal Tapes/Mesh used for Stress Urinary Incontinence (SUI), Pelvic Organ Prolapse (POP) and Hernias.

Define Chronic
Of long duration and slow progression. Illnesses that are chronic develop slowly over time, and do not end. Symptoms may be continual or intermittent, but the patient usually has the condition for life. Read More on this external link http://medical-dictionary.thefreedictionary.com/chronic >>>

Define Implant
Implant to insert or to graft (tissue, or inert or radioactive material) into intact tissues or a body cavity. To read more please visit this external link http://medical-dictionary.thefreedictionary.com/implant >>>

Define Inflammation
Inflammation a protective tissue response to injury or destruction of tissues, which serves to destroy, dilute, or wall off both the injurious agent and the injured tissues. The classical signs of acute inflammation are pain (dolor), heat (calor), redness (rubor), swelling (tumor) To read more please visit this external link http://medical-dictionary.thefreedictionary.com/inflammation >>>

What does 'TVT' mean
Confusion on the medical Device 'TVT'
Medical Term: TVT = TransVaginal Tape
Medical Term: TVT = TransVaginal Tension Free Tape
Medical Term: TVT-Secur = TransVaginal Tape (mini Sling)
Medical Term: TVM = TransVaginal Mesh
Medical Term: TVT-O = Trans-Vaginal Obturator Tape
Medical Term: TOT = TransObturtor Tape
To understand and read more please visit this link www.tvt-messed-up-mesh.org.uk/tvt-medical-term.html >>>

What is Synthetic Mesh?
Synthetic Mesh, also referred to as 'Surgical Mesh' is a woven fabric used for surgeries that include;
Pelvic Organ Prolapse
Vaginal Vault Prolapse
Chest wall reconstruction
Tissue Strengthening
Supporting internal organs
Treating surgical wounds and traumatic wounds

The most common types of surgical mesh are used as a 'sling' in stress urinary incontinence slings and mesh treating Pelvic Organ Prolapse and vaginal vault prolapse and a procedure called 'sacral colpopexy.'

What does Medical Condition Mean?
Medical states or medical conditions are used to describe a patient's health condition

Request to have our medical condition recognised
I asked Mr Drake on the 3rd of November 2011 for his opinion about our 'hidden disability' we can't keep saying we are 'mesh sufferers' as this is not really recognized. I have authorization from Professor Marcus Drake we can use this medical condition term in the UK 'Chronic TVT/Mesh Implant Inflammation'. At last we have something we can put on insurance, Disability Living Allowance (DLA) and other authorised forms. This is a great start and breakthrough news to those who are suffering from TVT's mesh/tape medical devices implants with mesh related complications.

UK flagUnited Kingdom
Medical Condition: 'Chronic TVT/Mesh Implant Inflammation'

Medical Condition Confirmed by: Professor Marcus Drake MA DM FRCS

Professor Marcus Drake is a Consultant Urological Surgeon at Southmead Hospital, visiting Professor at the University of the West of England, Senior Lecturer at the University of Bristol and Lead for Research at the BUI. Interests include female and reconstructive urology, urodynamics and the neuropathophysiology of the bladder. He is Chair of the National Institute for Health Research (NIHR) Comprehensive Clinical Research Network Urogenital Specialty Group, and website Editor of the British Journal of Urology International.

'Chronic TVT/Mesh Implant Inflammation' Support Group
www.tvt-messed-up-mesh.org.uk/tvt-mum-support-group-uk.html >>>

Self-Help Guide
www.tvt-messed-up-mesh.org.uk/advice-and-help-on-TVT-TVT-Secur-TVT-O-and-TOT-Tape-Mesh-Medical-Devices.html >>>

USA flag United States of America
Medical Condition: 'The PFS Syndrome (Painful, Firm and Short Vagina)'

Medical Condition Confirmed by: Professor Shlomo Raz, MD

Dr Raz is Professor of Urology and Chief of Pelvic Medicine and Reconstructive Urology at UCLA School of Medicine in Los Angeles.

DR. RAZ abstract from OBG Management, February 2009, Vol. 21 No. 2
Mesh infection, capsular formation, dissection of a thin vaginal wall, and excess vaginal-wall excision lead to the short, firm, and painful vagina. The use and abuse of mesh has created a new subspecialty to manage mesh complications. The PFS syndrome (painful, firm, and short vagina) is one of the most difficult complications to treat because,in many cases, it cannot be reversed without major surgery.

I will add more information to this webpage shortly, thank you for your patience.

You will see and hear from people who decided not to go ahead with surgery after reading our website. They have been saved from harm!

For more information on our petition please visit here www.tvt-messed-up-mesh.org.uk/petitions.html >>>

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