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The Voices Today on Messed up Mesh (TVT Mum)
Help and support to both men and woman who have had the medical device TVT Retropubic, TVT-Secur, TVTO and TOT, synthetic polypropylene mesh for hernias, prolapse, stress incontinence and bladder and bowel disorders. You're not alone!

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Open Letter

Open Letter
Date: 12th November 2011
By: Lorraine Evans

Since my research began in 2008 and through the campaign work on the website since May 2009 our medical condition 'Chronic TVT/Mesh Implant Inflammation' >>> although most of us are known as ('Mesh Sufferers') our plight would never or it would of taken a very long time to get people to notice we do need a support service in the UK. All those hundreds of people over the years who have approached me and our volunteer supporters for help, advice and support would of been sat at home alone and thinking they are the only ones!

It's only through my persistence with the help from the kind volunteers who joined the support group as the years went by we have made our support group stronger and stronger living in hope all of us will get the correct treatment and professional advice from a team of legal advisors and from expert surgeons in mesh related complications. I am happy to say we are progressing fast and achieving results tirelessly working every single day and taking those little steps closer to having our voices heard.

Anyone who has set-up and is running a charity will understand how difficult it has been for me to organize and put into place all the relevant information and the elements involved to get our small charity into the first advance stage it is today. I have had to cope with all the work alone putting into place the charity details and also I am trying to cope with the maintenance of the website, message board, daily emails and telephone calls, writing letters plus doing research on the TVT's and Meshes.

As you can imagine all the striving, reading and typing I have had to do during the years to get this far has been extremely difficult for me to keep things going and I am sure most people do realise the amount of work involved. I would like to say how fantastic it is to work as a group and for us to make excellent progress in such a short time.

I can only work at a pace that suits me due to my own ill health issues plus I have poor eyesight, thank you to all the ones who fully understand why I can't do the work faster and for all your continued support to our cause.

If you feel we have helped you in anyway please consider giving a donation >>> to help our volunteers continue to give the support group a place to visit plus it will help to keep the website live with regular updated news for the UK and worldwide. Many thanks for your kindness.

You will see and hear from people who decided not to go ahead with surgery after reading our website. They have been saved from harm!

For more information on our petition please visit here www.tvt-messed-up-mesh.org.uk/petitions.html >>>

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