The Voices Today on Messed up Mesh (TVT Mum)
Date: 12th September 2011
Letter: TVT Mum and the work achieved since July 2008
By: Lorraine Evans
Date: 6th September 2011
I started my research on TVT medical devices back in July 2008 this is when I discovered I had mesh erosion from the TVT and I was absolutely devastated to find out I had been lied to for years concerning my health as they all knew from the start of my surgery back in October 2005 it was the TVT causing me so much bad health all along. It has been extremely difficult for me to keep the work and the support group going whilst I am in ill health myself with TVT mesh problems plus I have other serious health issues since having this TVT implant, the NHS has left me permanently disabled.
This is when I decided to start the website TVT Mum in May 2009 as a voluntary non-profit charity organization to provide support, help and advice to many people around the UK plus we are also campaigning to bring awareness to the general public on these despicable medical devices TVT, TVT-Secur, TVT-O and TOT Vaginal Tapes/Meshes and other mesh products.
All the campaigning from the support group has given the general public in the UK an insight on why there is such a serious health problem affecting thousands of men and women and how the medical world including the Governing bodies tried to get away with it for years and years.
Some people do not fully understand the complexity of our situation it is not only our health that has been so badly damaged it has also affected our quality of life plus the medical world is involved including the Manufacturers who have been allowed to put these numerous different Vaginal Tapes/Mesh medical devices onto the market due to very lax medical device regulatory controls and no long term RCT’s, the National Institute of Health and Clinical Excellence (NICE), the Medicines and Healthcare Products Regulatory Agency (MHRA), the National Health Service (NHS), the General Practitioners and the Surgeons, we are trying to find out why they are still continuing to use these very harmful medical devices today.
The sheer scale of constant reading and writing to understand our situation is beyond belief it has been extremely difficult for me to try and explain to some people when they don’t fully read the website, most of the time I have to say to many people please read a little each day to grasp an understanding on how our health and quality of life has been so badly damaged by one piece of ‘plastic mesh tape’ (synthetic Surgical Polypropylene Mesh) it’s unbelievable to realise how our lives have drastically changed overnight from one piece of plastic tape/mesh and it’s all very true.
The website traffic report proves we are watched globally with hundreds of thousands of hits a month. Most of the members in the support group have said to me they are so pleased to of found the website and no longer feel alone. TVT Mum has possibly saved hundreds of people from harm and now with our work progressing fast it will continue to save hundreds in fact thousands more people.
During these past years I have received hundreds of enquiries from men and women needing help and really proud to announce we have achieved a Public Health Warning issued from the Medicines and Healthcare Products Regulatory Agency (MHRA) and a forthcoming National Mesh Register for the UK plus after months of meetings we now could have a possible Group Litigation for the UK. This is a massive achievement for our unknown charity concern although it ‘will’ be known in the UK very soon! After years of campaigning with my constant persistence and inner strength progress is at last being made and all is going in the right direction. It just goes to show and prove you can have your voice heard.
Keep watching the website for future developments on our work. My grateful thanks to you all who continue to support our cause.
For more information on our petition please visit here www.tvt-messed-up-mesh.org.uk/petitions.html >>>
Navigation links within the TVT Mum website
Advice and Help Guide on TVT, TVT-Secur,TVT-O and TOT Tape/Mesh Medical Devices | Alernative Treatments for Stress Urinary Incontinence (SUI) and Prolapse (POP) | Men's Health | Mesh Related Complications | Mesh Unexplained Symptoms | Mesh Surgery Experiences | Mesh Removal Stories | Synthetic Mesh Other Nasty Products | TVT, TVT-Secur, TVT-O and TOT, Medical Devices | TransObturator Tape (TvT-O and TOT) Medical Devices | TVT Medical Terminology