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The Voices Today on Messed up Mesh (TVT Mum)
Help and support to both men and woman who have had the medical device TVT Retropubic, TVT-Secur, TVTO and TOT, synthetic polypropylene mesh for hernias, prolapse, stress incontinence and bladder and bowel disorders. You're not alone!

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TVT Mum Support Group in the UK

Date: 9 August 2018
Latest News

The Independent Medicines and Medical Devices Safety Review
In February 2018, the Secretary of State for Health and Social Care, the Rt Hon Jeremy Hunt MP, announced a review into how the health system responds to reports from patients about harmful side effects from medicines and medical devices.
Review team visits around the UK, if you can't make it to visit the review team please email your mesh surgery experience and any other relevant details for them to have for their review.
Website: http://immdsreview.org.uk/visits.html
Progress: http://immdsreview.org.uk/news.html
Email: Reviewteam@kcl.ac.uk

Official TVT Mum Online Petition
The online petition is live and active and will remain until we are all completely satisfied the necessary action has been taken for everyone, the petition is extended and updated annually with any important news arriving in. The petition is in the public domain with numerous signatories and some have shared their mesh surgery experience, all signatures are genuine. If you haven't signed please show you care and sign the petition today, thank you for your support to the cause.
Petition Link: https://www.thepetitionsite.com/1/an-urgent-review-is-required-on-the-medical-devices-tvt-tvto-tot-and-the-use-of-mesh-graft-for/

About the Support Group
TVT Mum website is purely to give help and support to both men and woman who have had the medical device Transvaginal Tension Free Tape (TVT) Sling, synthetic polypropylene mesh for hernia's, prolapse, stress incontinence and bladder and bowel disorders. If you are seeking answers or maybe you want to share your experiences we're here to give you comfort and to let you know you are not alone, we can help each other through this very difficult time coping with our daily life from being harmed by these medical devices. We are not here to give medical advice in any way although we can put you in contact with professional experts who can help you.

Confidential Telephone Help-line please visit the link below for details:
Contact us >>>

Advice and Help on TVT, TVT-Secur,TVT-O and TOT Tape/Mesh Medical Devices
This small self-help guide is for everyone when you first discover you have a problem with your tvt, tvt-secur, tvt-o and tot or any other mesh related medical device. Please click here for more information www.tvt-messed-up-mesh.org.uk/advice-and-help-on-TVT-TVT-Secur-TVT-O-and-TOT-Tape-Mesh-Medical-Devices.html >>>

NHS England Patient and Public Voice (PPV) Members
July 2014
NHS England confirmed Lorraine Evans and Hayley Martin are appointed to the working group as Patient and Public Voice (PPV) Members

The working group has been established by NHS England to address concerns over surgical procedures using devices to treat stress urinary incontinence and pelvic organ prolapse. Membership will be multi-professional and include representatives from: NHS England; Department of Health; Scottish Government; Welsh Assembly Government; Medicines and Healthcare Products Regulatory Agency (MHRA); British Society of Urogynaecology (BSUG); British Association of Urological Surgeons (BAUS); and Royal College of Obstetricians and Gynaecologists (RCOG) and patient support groups. The Northern Ireland Government will be informed of progress. Please press here to view all information >>>

Alternative Treatments for Stress Urinary Incontinence (SUI) and Prolapse
Sometimes when we visit our consultants they do not tell you about alternative treatments for stress incontinence. Most of us were told TVT Tape is the best treatment without first telling us there are other methods to relieve and cure stress incontinence. I was told on good authority from a medical expert most of the time surgical intervention is completely unnecessary. Please find following some PDF's recommended from peer articles to treat stress incontinence. You decide what is best!
Please press here for more information >>>

New Patient Advice
Before having an operation for POP or SUI, be sure to let your surgeon know if you've had a past reaction to mesh materials such as polypropylene
Please press here to view more information >>>

Support Group Meetings
All our support group meetings in the UK.
Please click on this link to view Support Group Meetings >>>

Articles and Letters by Lorraine Evans Founder of TVT MUM
All articles and letters in one place. The biggest achievement for TVT Mum was finding help and giving emotional support to all those suffering serious health issues since having the synthetic mesh implant medical device surgeries.
Please press here to view all articles and letters >>>

All the latest news and Updates
All Global latest news including archives since the Year 2009.
Please press to view all Global Latest News >>>

How mesh surgery has effected our quality of life
I decided to publish this webpage to give a more understanding to the general public and to everyone who is suffering from mesh surgery. This will give you the opportunity to share your stories on how these mesh surgeries has affected your daily life.
Please press here to view >>>

Mesh Surgery Stories on TVT, TVTO and TOT Medical Devices
Many people have requested a webpage to show men and women who want to share their experiences with the Transvaginal Tension Free Tape (TVT), Tension Free Vaginal Tape Obturator (TVT-O) and Trans-Obturator Tape and (TOT) medical device plus a chance to express their views on the current situation regarding these medical devices.
Please press here to view more information >>>

TVT, TVT-O, TOT and Flat Graft Mesh for Prolapse and hernia
Stories from Mesh Injured Patients

The only way we are ever going to get this out in the public domain is through sharing your story and caring for each other. If you are having legal advice or in litigation you can remain anon and leave names out on your story and replace with 'her' or 'him' etc. We are a bit concerned not one solicitor in the UK has put anything out there by way of a press release, advertising etc into the public considering it is all over the news in the United State of America.
Please click here to read more >>>

Since the TVT and Mesh Surgery there are Unexplained Symptoms
This webpage has been requested by women. Unfortunately due to the lack of long term randomised control trials and very little research there is concern other mesh related symptoms are appearing without explaination from the doctors, consultants and surgeons. All the questions below have been submitted with the name and address to TVT Mum with permission to publish
Please click here to read more >>>

Surgeons - Who do we trust?
Since early 2012 there appears to be some excellent surgeons coming forward dealing with mesh related complications. There are still too few surgeons in the UK but they are around now and we are pleased to see and hear our health situation is being taken seriously.
Press here for more information >>>

Mesh Related Complications
There is serious under-reporting about the side effects and complications associated with TVT, TVT-Secur, TVT-O and TOT medical devices - FACT. Please find following from reliable research and from clear evidence there are numerous complications.
Please press here to view information >>>

Men with Mesh Related Complications and unexplained Symptoms
This webpage has been requested by men. We fully understand it is very diffcult for any man to talk about this very taboo subject, however, we are all so used to speaking and hearing about the problems with hernias and the use of synthetic meshes it is now great to hear men do not feel alone.
Please press here for more information >>>

TVT, TVTO, TVT-SECUR and TOT Medical Devices
This webpage has been requested from people who have had the TVT, TVTO, TVT-SECUR and TOT medical device and are confused as to which one has been implanted into their bodies.
Please click here to view information >>>

What are the most common vaginal mesh implants and who manufactures them?
One of our members sent this to us for your information:
There are a number of vaginal mesh devices that have been in use in the last decade. And while there have been a number of manufacturers of these products, there are are approximately seven medical device companies that manufacture the vast majority of these products. Below is a list of the largest manufacturers and the vaginal mesh products they manufacture.
Please click here to view more information >>>

Statistics and Under-reporting
There is serious under-reporting about the side effects and complications of these medical devices. Let us show you our perspective on these over-marketed and over-rated medical devices.
Please press here for more information >>>

Important Questions and Concerns
Concern - Misrepresented on the word "Tape" used for the product TVT
TVT stands for Trans-vaginal Tension Free Tape or Tension Free Vaginal Tape. My argument is I feel the product is misrepresented by using the word "tape" I feel it should have the correct labelling saying it is Polypropylene Synthetic Mesh Tape.
Please click here to view more information >>>

August 2014 Newsletter
Have a cuppa in hand before reading our lengthy newsletter this is an important one to read.
During the year 2014 we have worked hard providing emotional support via email, telephone and through the message board. May 2014 we had our first support group meet-up at Castle Combe, Wiltshire. We are currently organizing another meet-up on Saturday 25th October 2014 in Aldershot, Hampshire you can find the details posted on the message board. July 2014 we had our first NHS England working group meeting in London. We have also continued with our research on synthetic meshes for Stress Urinary Incontinence (SUI), Pelvic Organ Prolapse (POP) and Hernias.
Please click here to read more and for all newsletters >>>

The History of TVT Messed up Mesh (TVT MUM) Year 2008 to 2015

Important Video's to Watch
Videos to watch from all around the World
Please click here to view videos >>>

Frequently Asked Questions
Please press here to view >>>

Feedback and Comments
Please press here to view >>>

Have your Say
Have your say on medical devices using Polypropylene Synthetic Mesh. We want to hear your experiences, your views and concerns.
Please click here to view >>>

People's thoughts on our work
We get a lot of emails and telephone calls every single week from people who show an interest in our work, we thought it a good idea to share some of the comments we receive.
Please press here to view information >>>

In Memory
Who is going to speak up for the ones who have died and for those who continually have devastating life-long health problems.
Please press here to view >>>

Wall of Shame
A webpage requested by people harmed by synthetic meshes
Please click here for information >>>

A nice webpage to cheer us up
Please press here to view >>>

There are many people who have signed our online petition and some have shared their stories. Some have also downloaded a copy to collect signatures. It is fantastic to see the men are starting to sign the petition too, we need you all to support our cause and help all women who are wives, mothers, grandmothers, sisters and daughters suffering.

Online Petition:
TVT Mum Petition to sign online >>>

Progress on petition signatures:
Petition and Signatures >>>

Truth in Medicine - Lana Keeton, Founder and President Miami Beach, FL, USA
Please press here for more information >>>

How come people in Australia had the full facts on complications?
A must read for everyone on consent form issued in Australia to all patients before surgery, Please click on the link to view the PDF, you will be amazed on the information it contains!
Please click to read the Australian-consent-form
Oh dear, it has came to our attention the link that showed the consent form on the internet has been taken off the internet, I wonder why! anyway I do happen to have the original PDF. Thank you. Original link was...
Version 3: 06/2004 (JUNE 2004)
I am sure you will agree, if we had this in the UK, Europe, USA or anywhere else in the World we all would of said... "No way do I consent to this surgery!"

Useful Information for Patients and Clinicians
5th November 2011
Breakthrough News
In the UK and in the USA this is a recognized 'Hidden Disability' - Confirmed Medical Condition UK: 'Chronic TVT/Mesh Implant Inflammation' and in the USA: 'PFS Syndrome'. I asked Mr Drake on the 3rd of November 2011 for his opinion about our 'hidden disability' we can't keep saying we are 'mesh sufferers' as this is not really recognized. I have authorization from Professor Marcus Drake we can use this medical condition term in the UK 'Chronic TVT/Mesh Implant Inflammation'. To read more please visit the link below for more information:
www.tvt-messed-up-mesh.org.uk/hidden-disability-chronic-tvt-mesh-implant-inflammation.html >>>

Parliament and 10 Downing Street
Please click here to view information >>>

United Kingdom Press Releases
Please click on the link below:

Scotland Press Releases
Please click on the link below:

Medicines and Healthcare Regulatory Agency (MHRA) Latest News
Please click on the link below:

Worldwide Press Release and Latest News
Please click on the link below:

Useful information for the Solicitors in the UK
Please press here for more information >>>

Expert Medical Advisors Accolades
Please press here to view >>>

You will see and hear from people who decided not to go ahead with surgery after reading our website. They have been saved from harm!

Navigation links within the TVT Mum website

Hidden Disability Chronic TVT/Mesh Implant Inflammation |
Articles, Urology/Urogynaecology Conferences and Research from around the World |
Articles and Letters by TVT Mum

British Medical Journal | Dispatches Channel 4 Documentary 'The truth about going under the knife'

Advice and Help Guide on TVT, TVT-Secur,TVT-O and TOT Tape/Mesh Medical Devices | Alernative Treatments for Stress Urinary Incontinence (SUI) and Prolapse (POP) | Men's Health | Mesh Related Complications | Mesh Unexplained Symptoms | Mesh Surgery Experiences | Mesh Removal Stories | Synthetic Mesh Other Nasty Products | TVT, TVT-Secur, TVT-O and TOT, Medical Devices | TransObturator Tape (TvT-O and TOT) Medical Devices | TVT Medical Terminology

Medicine and Healthcare Products Regulatory Agency (MHRA) | Worldwide Medical Device Incident Reporting
TVT Mum Volunteers | The History of TVT MUM| Latest News |
Frequently Asked Questions | Press and Media | Testimonials |
Privacy and Data Protection | Terms and Conditions | Website Map | Links

Location: Stoke Gifford, Bristol, United Kingdom


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